Anyone here with sarcoidosis?

I was diagnosed in 05'.  I had a lung biopsy, and ruled out cancer, so they told me it was sarco.  Doctor told me not to worry about it if I did not have wheezing type symptoms.  However, it has been extremely hard to lose weight, and extreme joint pain, especially working out...just seeing if anyone has heard of this association?  I don't know anyone else that has it.

I don't have this myself, but I found a link that says that sometimes affects bones and joints: http://www.nhlbi.nih.gov/health/dci/Diseases/ sarc/sar_whatis.html

It might help to look at what the exercise recommendations are for people with other conditions that have joint pain, such as arthritis: http://www.arthritis.org/exercise-intro.php

Another thing that might help would be to look for a personal trainer who deals with people with joint pain and pay for a few sessions to get some one-on-one coaching.

I hope that helps (at least it will bump this up in the forum so that perhaps someone more knowledgable will chime in).