| Forum | Topic | Date | Replies |
| Health & Support | Hypothyroid Club | May 12 2008 02:46 (UTC) |
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Hi there irishmum, I see your post is over a month old - welcome! Yes, I've really abandoned this thread because my diet has been in the toilet! I was dx'd about 2 1/2 yrs ago and still haven't gotten my meds up to par. Your TSH is high - What symptoms do you have? I wish I had good news for you about being able to just melt the weight off after our thyroid meds are adjusted. Unfortunately, that is not the case with most of us, although it does happen with some. That's not to say that it is impossible though. You've probably figured out by now that the 4 wks to weight loss is not a diet, but rather a series of informative sessions that can help us to understand how people with hypothyroidism can be successful with weight loss. For us, it's harder to lose and to maintain weight loss than it is for healthy people. There are a number of reasons for that, which About.com's Thryoid site explains. That is a very active site and the articles and forums on there are excellent. I've gained and lost weight so many times over the years I can't even count them. It's been hard to be consistent because of lack of energy, mood fluctuations, and a lifestyle that is always in flux (self employed and traveling frequently for long periods). I will lose 10-30 lbs and then gain it all back when my thyroid symptoms flare. I once lost 72 lbs, and then I found it. But we will keep pressing on until we reach the goal! Good luck! Sierra
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| Health & Support | Hypothyroid Club | May 12 2008 02:30 (UTC) |
11 |
Hi Vonnie, You're fortunate to have gotten a diagnosis and started treatment at your age. So many of us go for decades feeling lousy before we finally find a doctor who figures it out. Have you looked at About.com's Thyroid site? It's really the best place to go for information and also for forums regarding our condition. It's a very active one and if you post a question you'll get answers right away. Good luck!!! Sierra |
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| Health & Support | Hypothyroid Club | May 12 2008 02:24 (UTC) |
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Hi Gibbit - Welcome - I've been very flakey about keeping up with this thread because I keep falling off the wagon with my diet. My weight goes up and down and currently is up. It's really difficult to be consistent with my diet when my energy and mood are continually fluctuating. I was dx'd about 2/12 yrs ago and still haven't gotten my medications optimized yet. Hormones definitely effect thyroid medications. I started on an estrogen patch - post menopause - and had to increase the Synthroid. I added some Cytomel to the Synthroid recently and it's helped. Have you been on About.com's Thyroid site yet? It's really the best on the web - tons of info and a very active forum. Sierra |
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| Weight Loss | Hit the halfway mark!! Wooo!!! | Mar 10 2008 00:26 (UTC) |
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HOORAY!!! KEEP UP THE GOOD WORK! |
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| Health & Support | Hypothyroid Club | Mar 04 2008 18:49 (UTC) |
16 |
Welcome Maylynn, I'm sorry to hear about the dx. Fortunately, though they did find it and will treat it - many of us were hypo for many years before being treated. Learn all you can about thyroid disease. The About.com Thyroid website is really the best overall on the web I think. There is lots of information and support to be found there. The moderator, Mary Shoman is an expert and a patient herself who has written many excellent books on the subject. We can get a lot of helpful tips for weight loss with hypothyroidism through that site. Mary Shoman offers a "4 weeks To Weight Loss For Thyroid Patients" (E-Course) ;- A free course that will be emailed to you each week. You can sign up for this newsletter at http://thyroid.about.com/gi/pages/stay.htm Treating thyroid disease is a lifelong process requiring much patience. When I was dx'd I thought for sure I'd just start dropping those pounds - but it takes time and effort. The good news is it IS possible, and you will begin to feel better both physically and mentally once your meds are optimized. You may need to re-educate yourself about "how" you diet. The rules change a bit with thyroid disease. Calorie Count is a fantastic tool for keeping track- so be sure to stick with that part of it. You also will want to lean more towards a lower carb and low fat (not too radical though) approach. Steering away from sugary foods and opting for whole grains, etc will go a long way to help your metabolism function better. If I eat 1600 calories a day but it is comprised of a lot of simple sugars, white flour, etc, not only will I not lose anything, but it causes me to crave sweets and carbs even more. Good luck, and keep us posted! Hope to see you on About's Thyroid site too! Sierra
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| Health & Support | Hypothyroid Club | Feb 28 2008 16:50 (UTC) |
18 |
UPDATE: We can get a lot of helpful tips for weight loss with hypothyroidism through About.com's thyroid site. Thyroid moderator Mary Shoman offers a "4 weeks To Weight Loss For Thyroid Patients" (E-Course) &nb sp;- A free course that will be emailed to you each week. You can sign up for this newsletter at http://thyroid.about.com/gi/pages/stay.htm
Sierra |
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| Health & Support | Hypothyroid Club | Feb 27 2008 04:46 (UTC) |
19 |
Carrie - Thanks so much for the encouragment. I'm at an all time high with weight and a real low with the mood - so I'm feeling ready to start at it again. I should mention that I never had a weight problem until I was 39 and had a hysterectomy. Then 10 years ago I got agressive and lost 75 lbs. At the time I was recovering from a 10 year bout with CFIDS, had yet to be dx'd thyroiditis, and was in menopause. I totally agree about the 80/20 - diet/exercise. I lost the first half of it with no exercise at all - and the rest with just 20 minutes a day, so I truly believe I can do it again. I felt good for the first time in years. Unfortunately, about 2 years later I had a autonomic nervous system meltdown (due to thyroid), developed an anxiety disorder, and gained every stinkin pound back plus 10 more. Like you say, it's that black hole - got some family issues dragging me down currently so I end up on the diet see-saw to the point of just giving up. Thanks again - your story gives me incentive.
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| Health & Support | Hypothyroid Club | Feb 26 2008 17:38 (UTC) |
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Hi Carrie, That's so cool that you were able to lose all that weight! Congrats!! I'm curious. Are you hypothyroid due to injury or to Hashimoto's? I noticed that you have a fantastic energy level and are able to exercise. Even during my better years I could never come close to working out the way you do. No joke, I am lucky to walk around the grocery store and keep up with my housework! I have a long history of Chronic Fatigue Syndrome too - which I thought was mostly behind me, so I really don't know how much that plays into my inability to exercise. It seems like a lot of people with the autoimmune Hashimoto's have more problems with low stamina and exercise intolerance and I sometimes wonder if the autoimmunity aspect of the disease affects more than the thyroid. One reason I question this is that my good friend had thyroid cancer. She has no thyroid and has struggled with her weight too. The big difference though is that she has so much energy. Even though we both have thyroid problems and are on the same meds, are the same age, and have about the same amount of weight to lose, it's as though we are from different planets. She can ride bikes, exercise, work like a horse all day and feel generally terrific. I have another friend with Hashimoto's though who definitely has a lot more energy than I do, and no weight problem. She walks 3 miles every day. I'm so envious. I just feel so lousy all the time - which leads to depression, which leads to falling off the wagon with dieting. It's a vicious cycle. But it's encourageing to hear that others are having success - keeps my hopes up! Sierra |
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| Health & Support | Hypothyroid Club | Feb 26 2008 17:19 (UTC) |
22 |
Hi JZ- I just found your post to me! I've really gotten goofed up with logging into CC ever since they changed the format. Plus, I've not had an ounce of success losing this weight battle. Wow, so glad to hear that you lost 45 lbs! Sounds like you finally found a great doc. (BTW, after 30 + years I finally found a doc who not only dx'd the Hashi's, but is very willing to listen and try pretty much anything I want to - and guess what? He's a dude! :) Sounds like your whole family has been affected by autoimmune disorders too. My brother has Raynaud's and probably other things too. I also have a history of Chronic Fatigue Syndrome - which most researchers think is also autoimmune too. As far as the weight loss goes, I've gained back what little I lost and now weigh as much as my all time high again. I don't know if this has anything to do with it, but I've gained close to 20 lbs since last summer when I added a bio-identical hormone patch. On the one hand it's been terrific - no more hot flashes; I'm dreaming again and finally have some emotions (maybe too many!) I still have very little energy though and feel lousy because I'm still trying to get my thyroid meds figured out. Just added T3 a few weeks ago - I suspect I will have to bump that up again at my next dr visit. I just can't seem to stay on track with the dieting. I will get motivated and do really well for a short time. Then, I'll get depressed and will give up. It's not like I eat everything in sight when I "give up"- it's just that I stop paying attention to every tiny morsel that goes in my mouth. Plus I will have dessert or add butter to something I don't usually. It doesn't help that I can't exercise due to feeling so fatigued and also having a nasty bout with plantar faciitis (can hardly walk). I'm hoping that getting all the meds straightened out will help my mood and energy so that I will be able to stick with the right eating habits. Good luck! Sierra
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| Health & Support | Hypothyroid Club | Jan 09 2008 19:38 (UTC) |
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I know I'm not a great one to give advice right now since I have a whole lot more to lose than you do. However, I have had lots of experience over the years with both failures and great successess too. I haven't read the Thyroid Diet so I don't know what the plan is there. In the past I was able to lose by counting calories and fat grams. Then that seemed to have stopped working so well. Now I have started counting carbs too and that seems to be working...so far. I try to shoot for the following: calories: 1600 fat: around 50 grams (30%) Protein: around 131 grams (35%) - this has been practically impossible for me. carbs: around 131 (35%) I try to avoid white stuff like white bread and sugar - go with 100% whole wheat, fruits and veges for carbs. Dessert treats are rare now even if they are low fat, reduced calorie. I haven't been able to excercise at all for awhile- due to fatigue and some foot problems. But in spite of that I'm starting to lose - I think changing the carbs to more complex forms and fewer of them is what's making the difference. You probably already know that with hypo we can't go too low on carbs or fat. sierra
&nb sp; &nb sp; |
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| Health & Support | Hypothyroid Club | Dec 19 2007 06:38 (UTC) |
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| Health & Support | Hypothyroid Club | Dec 19 2007 06:38 (UTC) |
35 |
Hi jzlady, Hashimoto's thyroiditis is the most common cause of hypothyroidism. It was named after the doctor who discovered it. Hashi's is an autoimmune disease where the body produces antibodies that attack specifically the thyroid gland. Like other autoimmune diseases it flares up and does damage to the thyroid, then subsides. It does this over many years until the thyroid is no longer functioning. It's common to have a goiter with multi nodules. In the process of this you can also have periods of hyperthyroidism as the thyroid sputters until it finally burns out. It's not fatal, just a royal pain in the you-know-what. If it were NEVER treated and the thyroid stopped working completely, I guess it would eventually become life threatening since we can't live without thyroid produciton. Most people live with it for many years before symptoms become bothersome. Many people are also misdiagnosed and not properly treated because the symptoms mimic so many other conditions. Autoimmune diseases tend to run in families although other family members may have a different AA disease. ie. Rheumatoid arthritis, lupus, Chronic Fatigue Syndrome, etc. There's over 100 different AA diseases. Also, many people that have an AA disease have a greater chance of having more than one. Your anitbodies are really high. I don't know a lot about that but I do know that tests can be very misleading as far as how we feel. My thyroid antibodies (TPO) were only around 400 and my TSH about 3.5, but I felt sooooo miserable I could hardly function. Also,different labs have different values, so that needs to be taken into consideration too. You should check out the Thyroid web site here at About.com. It's probably the best on the web with a moderator (Mary Shoman) who has written many books on thyroid and autoimmune diseases. There is a ton of info there. I have the same kinds of struggles you do. Glad to hear you've made some progress with the 41 lbs. Good for you! Sierra
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| Health & Support | Hypothyroid Club | Sep 04 2007 06:23 (UTC) |
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Soxgalco - You have a lot on your plate goin on. I wish you well with your new health challenges. I had the same problem with when to take the Synthroid since I also take a boatload of other pills. I keep mine on my nightstand with water and when I wake up in the night to go to the bathroom I take it then. I've only missed it a couple of times. Just a thought.
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| Health & Support | Hypothyroid Club | Sep 04 2007 06:23 (UTC) |
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Soxgalco - You have a lot on your plate goin on. I wish you well with your new health challenges. I had the same problem with when to take the Synthroid since I also take a boatload of other pills. I keep mine on my nightstand with water and when I wake up in the night to go to the bathroom I take it then. I've only missed it a couple of times. Just a thought.
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| Health & Support | Hypothyroid Club | Sep 03 2007 20:47 (UTC) |
55 |
Hi Desperate, Correcting an underactive thyroid is a long, tedious process requiring lots of patience. You should have your TSH and Free T3 and Free T4 levels checked about every 8-12 weeks until you are stablized. Make sure your doc and lab are using the new TSH standard ranges of .3 - 3.00. Also, another thing that is terribly overlooked is a check of your estrogen levels. You had a baby and estrogen and thyroid levels can really impact each other. Sadly, few doctors think about this. You might want to pick up Dr. Elizabeth Lee Vliet's book "Screaming to Be Heard - Hormone Connections Women Suspect..And Doctos Still Ignore". She also wrote "Women, Weight, and Hormones." These books have a wealth of sound information that every woman should be aware of. And especially those of us who have other endocrine embalances such as thyroid problems. Good luck. Sierra
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| Health & Support | Hypothyroid Club | Aug 15 2007 14:04 (UTC) |
69 |
| dsader,
Personally, I would not do it unless my doctor gave me permission. I've known people who have but I don't think it's wise. It takes 8-12 weeks for each new dosage increase or decrease to readjust in your system. It's important to get labs done after each increase has had a chance to reset your system. If you start dosing yourself up before your the last increase has fully taken effect you could end up hyper. And if you have any other preexisting conditions such as heart problems you could potentially end up with a problem. Always best to run it by your doctor first. |
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| Health & Support | Hypothyroid Club | Jul 27 2007 15:27 (UTC) |
80 |
| dsader, First, this is a long, process to better health which requires a great deal of patience. We're talking months, and for some even years. It takes several weeks for each dosage increase to take full effect and a lot of playing with it to get where you need to be. So hang in there! Different approaches work better for different people. Some people have been very diligent with good diet and exercise prior to beginning treatment and experienced up to 20 lb losses fairly quickly without extra effort. Others of us haven't had the best eating/exercise habits to begin with and then wonder why the magic pill isn't working. There are also those who do well with diet/ exercise but for some reason just can't seem to get it off. So the whole weight loss thing is a mixed bag. Hypothyroidism can cause both depression and anxiety to varying degrees. Because of this addition to the mix, it can really effect our eating habits also, as we have more of a propensity to become emotional eaters. Hypothyroism also can cause fatigue, often extreme. Some folks don't experience that symptom as much as others and are still able to exercise. Others, like myself, have so much difficulty with fatigue that the thought of even walking around the track at the high school makes me tired! If you go on www.about.com and navigate to their Thyroid website hosted by Mary Shoman, you will find a boatload of tips for losing weight with hypothyroidism. Good luck! Sierra |
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| Weight Loss | Final Results Posted Way to go Everyone!! Thanks for the Participation!! | Jul 19 2007 15:16 (UTC) |
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| sorry I have to drop out due to extended travel for work. Good luck everyone! | |||
| Health & Support | Hypothyroid Club | Jul 15 2007 03:26 (UTC) |
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| lornajean,
Just curious, with a TSH of 34.8 can you even function? Mine was only 3.7 and I had zero energy and slept all the time. Maybe the numbers aren't necessarily an indicator of how lousy one feels? Sierra |
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| Health & Support | Hypothyroid Club | Jul 14 2007 18:41 (UTC) |
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| Hi all,
I'm so discouraged today. Lost 19 lbs by faithfully adhereing to an average of 1450 cal and 50 ft grams. Took 4 months. Then gained back 4 lbs in just 7 days of not counting every stinkin calorie. My TSH was a little high again (3) and I was feelin real tired so my doc bumped me up again to 75. Every time I get my Synthroid increased I get hopeful that all my hard work will start to pay off. But alas, the battle rages. I'm so tired all the time from the hypo that I don't have the energy to exercise, which doesn't help. I envy all of you hypo's that can exercise like crazy at the gym!!! At least it's good for you even if you still battle the bulge. Never been able to do that. I also have a history of Chronic Fatigue Syndrome, but don't know where that left off and Hashimoto's began, or visa versa??? Being over 50 doesn't help a bit either! Ah....Whine....whine.... Sierra |
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| Weight Loss | Final Results Posted Way to go Everyone!! Thanks for the Participation!! | Jun 28 2007 01:56 (UTC) |
116 |
| Team 3 183.00 | |||
| Weight Loss | Final Results Posted Way to go Everyone!! Thanks for the Participation!! | Jun 20 2007 19:23 (UTC) |
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| Team 3 - 183.4 - After a month's platuea it's about time! | |||
| Health & Support | Hypothyroid Club | Jun 13 2007 22:50 (UTC) |
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| Lori,
The 3.03 is still considered slightly high by the new standards - I don't know what to tell you. The antibodies can go up and down too - but since yours are negative they have probably ruled out Hashimoto's. You could always get a second opinion - but it would be good to get to the bottom of why you feel lousy. It could be something else too. I hope you can get something figured out soon. Sierra |
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| Weight Loss | Final Results Posted Way to go Everyone!! Thanks for the Participation!! | Jun 13 2007 22:18 (UTC) |
243 |
| Team 3
184.6 |
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| Weight Loss | Final Results Posted Way to go Everyone!! Thanks for the Participation!! | Jun 06 2007 17:51 (UTC) |
310 |
| Team 3
Today's weight 185.4 |
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| Health & Support | Hypothyroid Club | Jun 03 2007 05:29 (UTC) |
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| If your test comes back with high antibodies then hopefully he will have learned something new. You're doing well to be proactive with your health care. Doctors are only human and are always learning too as new information arises. The sign of a good one is that they will be open and not feel threatened when their patients tell them something they don't know already.
Have you seen this article? http://www.aace.com/newsroom/press/2003/index .php.?r=20030118 You might have to copy and paste the address into your address browser - sometimes when just clicking onto the link here it will only take you to their homepage. |
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| Health & Support | Hypothyroid Club | Jun 03 2007 00:13 (UTC) |
112 |
| Hi Lori,
Your doc sounds good. Those are good tests - The autoanitibody test will tell you if you have Hashimoto's. I know some people want also want tests for T3 and Free T3 & 4, - my doc didn't need to order those - at least at this point. Did he start you on medication yet? |
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| Health & Support | Hypothyroid Club | May 30 2007 05:58 (UTC) |
117 |
| Lori, I only wrestled with about 15 - 20 extra lbs after having kids- but after age 40 and a hysterectomy, I had packed on over 70 extra pounds. I've lost it all and then regained and am now working at it again. My doc says that only about 15-20 lbs can be directly attributed to thyroid. Most doctors ascribe to that - but a lot of us have more than that to deal with. My personal opinion is that hypothyroidism causes depression, anxiety and fatigue among other things. These conditions aren't exactly conducive to healthy eating and exercise. I believe we can lose it though - we just need to be diligent and get proper treatment for our condition. Re them not catching your 5 + range; a lot of labs (and docs) are still going by the old standard of .5- 5.00 - My lab does, but fortunately I have a doc that's really on. Having a toddler will wear even a healthy person out! Not to mention having hubby gone a lot. But I do believe you can be helped - don't be afraid to speak up with your doc. If he's good he'll listen and communicate with you, and if not, then find one that will. I always go armed with as much info as I can and am not afraid to ask for specific tests or treatments. He will usually go along with my suggestions, but if there is a reason not to then he will explain why. |
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| Health & Support | Hypothyroid Club | May 30 2007 03:47 (UTC) |
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| Lori,
You're welcome. I'm on Synthroid. If he gives you a prescription for thyroid medication, it's important to request the name brand and not accept a generic. Generic components with this stuff can fluctuate and they often change manufacturers. Thyroid meds are very specific and touchy- the smallest change in their production can make a huge difference in how you get along. I just saw my regular doctor who is an internest. He's terrific. Funny thing about hypothyroidism, especially if it's caused by Hashimoto's, is that you can have normal ranges on all your thyroid tests but feel horrible because the autoantibodies are raging on and slowly destroying your thyroid gland. If you go to http://thyroid.about.com/library/links/blthyr oid.com you can get a ton of information - good luck with your appt, and let us know how it went. Sierra |
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| Health & Support | Hypothyroid Club | May 29 2007 18:18 (UTC) |
121 |
| Hi Lori, I don't blame you for being so upset. Yes, you can definitely feel very lousy with those ranges. Mine was just under 5 when I was dx'd and I was totally wiped out. And yes, you will feel better with thyroid medication. But please be very patient, because it can take months to feel good again. Thyroid medication is not like other drugs - it's a hormone so it needs to be introduced gradually and monitored. Most doctors (and patients) recommend that your TSH should be between 1-2 to feel your best. You just have to work with it to see what level is right for you. Did he do a TPO autoantibody test to check for Hashimoto's? If not, I would definitely request one. It's important to know why you are hypothyroid. At least you can be glad that you were dx'd while you're young. I raised all my kids being miserably sick all the time - wish one of the zillion doctors I went to would have picked up on it! Good luck! Sierra |
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