Posts by jarrettrenee


User's Posts | User's Topics

Forum Topic Date Replies
The Lounge Waking up during surgery?! Aug 05 2008
04:51 (UTC)
12

How long have you had the strabismus?  I have Myasthenia Gravis and as a result I have developed an intermittent strabismus and I really want to have it corrected. Can you give me any info to help me go about starting the process.

Fitness Exerciseing With Disabilities Jul 28 2008
02:18 (UTC)
2

I also have myasthenia gravis. I did not know it was a form of muscular dystrophy I was told it was a lot like multiple sclerosis. Anyway I am 32 and I was on prednisoe as well. Before pred I was 140 after pred I am 200. I had surgery in Nov. 07 and all of my symptoms are gone. Before the surgery I could not use my hands and arms...washing my hair was hard, getting dressed, etc. I also began having speech problems and swallowing issues. Since surgery (thymectomy) things are much better. I am slowly starting to workout again. Only problems I have now are with my eyes. I have double vision occasionally and my right eye tends to be a little droopy and lazy. I take Mestinon but hope to eventually not have to take anything!! Talk to your doctor for sure. I do not know how bad your situation is, but surgery was the best thing for me.

Let me know if you need anything!

Renee

Fitness Exerciseing With Disabilities Jul 28 2008
02:17 (UTC)
3

I also have myasthenia gravis. I did not know it was a form of muscular dystrophy I was told it was a lot like multiple sclerosis. Anyway I am 32 and I was on prednisoe as well. Before pred I was 140 after pred I am 200. I had surgery in Nov. 07 and all of my symptoms are gone. Before the surgery I could not use my hands and arms...washing my hair was hard, getting dressed, etc. I also began having speech problems and swallowing issues. Since surgery (thymectomy) things are much better. I am slowly starting to workout again. Only problems I have now are with my eyes. I have double vision occasionally and my right eye tends to be a little droopy and lazy. I take Mestinon but hope to eventually not have to take anything!! Talk to your doctor for sure. I do not know how bad your situation is, but surgery was the best thing for me.

Let me know if you need anything!

 

Renee

Weight Loss 5'6 Jul 18 2008
03:50 (UTC)
26

I am 5'6 almost 5'7..somewhere in between. I have been on every diet possible. Did great on weight watchers. Now I am trying Atkins. I started a week ago at my heaviest weight ever...207. Today I weighed in at 210 and I am hoping to make it to 140 before the end of the year. It would be a great Christmas present to myself :)

I am typically around 130, but last year was diagnosed with Myasthenia Gravis, it is an auto-immune diesease tht effects your muscles. I was barely able to get out of bed, let alone work out...so I had a pityparty for myself and gained 70+pounds. Things are better now and I am trying to reclaim my life:)

 

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