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Eating Disorders Health, Resources and Info Thread: Updated!


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EATING DISORDERS HEALTH, RESOURCES & INFO THREAD: UPDATED!

If you feel any informative or vital links and resources have been missed from this post, please let us know! Thank you, and we hope this is helpful all round.

Disordered Eating Defined
Recovery, Health and Seeing Your Doctor
Support on the Web
Friends, Family and Carers
Books, Stories, Clips and Memorial
Hotlines and Helplines
Resources

Edited Jul 17 2009 16:06 by nycgirl
Reason: Set as a sticky, 04/03/2009. 7/17/09: Unstickied
11 Replies (last)

Disordered Eating Defined - You Are Here
Recovery, Health and Seeing Your Doctor
Support on the Web
Friends, Family and Carers 
Books, Stories, Clips and Memorial
Hotlines and Helplines
Resources

DISORDERED EATING DEFINED

Here on CC, we are a community all about health, well-being and healthy weight management, and support those that are recovering from an eating disorder. And you may see this and immediately think of the big three, most commonly recognised eating disorders: anorexia nervosa, bulimia nervosa, and binge eating disorder. But there is a lot more to disordered eating than just these three classifications:

ED-NOS (Eating Disorder Not Otherwise Specified)
Compulsive overeating, sometimes known as emotional eating,
Compulsive over-exercising or exercise bulimia
Pica
Prader-Willi Syndrome
Night Eating Syndrome
Sleep Eating Disorder (SED-NOS)
Orthorexia Nervosa
Bigorexia

Each of these is just as severe as any other form of disordered eating.

Disordered Eating Defined
Recovery, Health and Seeing Your Doctor - You Are Here
Support on the Web
Friends, Family and Carers 
Books, Stories, Clips and Memorial
Hotlines and Helplines
Resources

RECOVERY, HEALTH AND SEEING YOUR DOCTOR

Admission of an eating disorder is a huge, huge step, but it is the first of many on the road to recovery. Recovery is much easier done with help and with a team than on your own. If you are in doubt of yourself, there is a questionnaire here that you can fill out to help clarify things: Signs of an Eating Disorder Questionnaire

But the first most vital thing to do when you suspect you may have an eating disorder is to go and speak to a doctor. There are many health risks related with all kinds of disordered eating: Dangers of Eating Disorders.

If not a doctor, then a loved one that you trust, a good friend, a clergy member, a teacher or school/college counsellor. Your family and friends can all find support just as much as you may need it.

Recovery: Reaching In - The First Steps

Disordered Eating Defined
Recovery, Health and Seeing Your Doctor
Support on the Web - You Are Here
Friends, Family and Carers 
Books, Stories, Clips and Memorial
Hotlines and Helplines
Resources

SUPPORT ON THE WEB

But, of course, while it is vital you have a support group around you in your everyday life, the web is also a bountiful resource of support and information.

ANAD - National Association of Anorexia Nervosa and Associated Disorders - A pro-recovery resources and free support network
Something Fishy - A pro-recovery & info website
Mirror Mirror - A pro-recovery website
Eating Disorders Online - A pro-recovery & info website
Academy for Eating Disorders - Providing general info
Pale Reflections - Pro-recovery resources and more
B-eat - The leading UK charity in regards to awareness and support of those with eating disorders
http://www.oa.org/index.htm - Overeaters Anonymous

On top of this About.com has its very own Nutritionist Mary Hartley contributing her advice and help to those with questions about eating disorders, as well as Calorie Count expert Matthew Tiemeyer's pages on disordered eating as well as a free newsletter available to anyone interested.

Matthew Tiemeyer
Eating Disorders
About.com Guide to Eating Disorders - With free newsletter.

Mary Hartley
Ask Mary
"Ask Mary" answers for EDs
Mary Hartley's page on Nutrition

In any eating disorder it is important to focus on getting the right balance of nutrition and a good relationship with food back overall. While the team you set yourself up with will help you in this you might want to wizen up on nutrition yourself. The right balance of food is absolutely vital, making sure you get all the food groups you need, essential vitamins and minerals, as well as including “fun” foods in moderation throughout your days. Ultimately, there are no bad foods - just bad diets. Everything in moderation!

Nutrition and Weight Information

http://www.eatwell.gov.uk/ - Food Standards Agency
http://www.nutrition.org.uk/home.asp?siteId=4 3§ionId=s - British Nutrition Foundation
http://www.nutrition.gov/nal_display/index.ph p?info_center=11&tax_level=1 - Nutrition information provided by the US government
http://www.mypyramid.gov- MyPyramid, a scheme of working out a balanced meal plan based on food group servings
http://www.kidshealth.org/teen/nutrition/ - Nutrition/Health for Teens
http://www.kidsnutrition.org/ - Children's nutritional information page
About.com BMI calculator for teenagers and children - Also works for adults!

In the case of anorexia nervosa and bulimia nervosa, if you are underweight, you may find that refeeding - the process of gaining weight - will mean you will require more calories than you may expect. Generally, a good number to aim for when gaining weight is a baseline of 2500 calories utterly sedentary when female, and 3000 calories utterly sedentary when male. You may find you need a lot more than even these two base numbers.

Study: Abnormal caloric requirements for weight maintenance in patients with anorexia and bulimia nervosa. - Weltzin TE, Fernstrom MH, Hansen D, McConaha C, Kaye WH, Department of Psychiatry, University of Pittsburgh School of Medicine, PA.

"CONCLUSIONS: To maintain stable weight after weight restoration, restricting anorexic patients require a significantly higher caloric intake than do bulimic anorexic patients. Differences in caloric needs between normal-weight bulimic patients with and without histories of anorexia may depend on the methods used to correct caloric requirements. Body surface area may be the most precise correction factor across different subgroups of eating disorder patients. Elevated caloric requirements, when coupled with reduced food intake, may particularly contribute to relapse in anorexic patients." Am J Psychiatry. 1991 Dec;148(12):1675-82."

Disordered Eating Defined
Recovery, Health and Seeing Your Doctor
Support on the Web
Friends, Family and Carers - You Are Here
Books, Stories, Clips and Memorial
Hotlines and Helplines
Resources

FRIENDS, FAMILY AND CARERS

It should be remembered that recovery is not just restricted to the person suffering from the eating disorder. Eating disorders have a resounding effect on family, friends, and carers. There is help and information out there for them too, all across the web as well as available from your doctor.

F.E.A.S.T (Families Empowered and Supporting Treatment of Eating Disorders)
Eating With Your Anorexic

Around the Dinner Table Forum - A forum of parents of anorexic or underweight restricting teenagers, generally working with the Maudsley method of refeeding. There is a bounty of useful general information on eating disorders, however.
FAQ of Common Recovery Questions
B-eat: Online Clips targeted at recoverers, family, friends and professionals
Gurze Books - A selection of articles and books related to recovery from various eating disorders.
What You Can And Can't Do: Helping a Loved One with an Eating Disorder

Disordered Eating Defined
Recovery, Health and Seeing Your Doctor
Support on the Web
Friends, Family and Carers 
Books, Stories, Clips and Memorial - You Are Here
Hotlines and Helplines
Resources

BOOKS, STORIES, CLIPS AND MEMORIAL


Articles and Clips  

"Defining what it means to be "Recovered"" - By Anna M. Bardone-Cone, PhD & Christine R. Maldonado, MA
"Why and How to Give Yourself Permission to Eat Anything" - By Evelyn Tribole, MS, RD
The Body Neglected - On how persistent undereating damages the body
Extreme dieting and why it doesn't work
One Spoonful at a Time - A wonderful NY Times Article from the mother of a young recovered anorexic and her tale of recovery from outside eyes
NY Times series of articles on Eating Disorders
15 styles of distorted thinking - If you have an ED or if you are having difficulty admitting the problem and could have distorted thinking
Aimee Liu - "Gaining"


Personal stories about Eating Disorders and their lasting effects

Anorexia nearly killed my wife
Anorexia: The physical devastation - A youtube video from personal experience
Anorexia as a treatable disease with longterm effects - A personal CCers account
Obesity on 800 calories a day
Caron's Story - While details of Caron’s weight has been edited out, this may prove triggering to those with an eating disorder. As such, please do be wary if you feel you may be easily triggered.
Patient Voices: Eating Disorders - A list of clips of those that have suffered from and recovered from a variety of eating disorders from all walks of life
http://www.youtube.com/user/eniwekwe - A series of revealing videos on the devastations of anorexia. In particular, The Ten Most Common Misconceptions about Eating Disorders.

Something Fishy's Memorial Wall - In memory of those lost to an eating disorder.

Disordered Eating Defined
Recovery, Health and Seeing Your Doctor
Support on the Web
Friends, Family and Carers 
Books, Stories, Clips and Memorial
Hotlines and Helplines - You Are Here
Resources

HOTLINES AND HELPLINES

Here are some helpful links, first off, that can help you locate possible treatment that is free of cost.

Something Fishy: How Will I Pay?

HOTLINES AND HELPLINES IN THE USA AND CANADA

EATING DISORDER HOTLINES

  • Anorexia Nervosa & Related Eating Disorders, Inc.
    (541) 344-1144
  • Eating Disorder Referral and Information Center
    (858) 481-1515
  • National Eating Disorders Association
    1-800-931-2237

SUICIDE CRISIS HOTLINE

  • Covenant House
    (800) 999-9999
    Hotline for youths needing somebody to talk to
  • Hope Line Network
    1-800-SUICIDE (1-800-784-2433)
  • TeenLine Hotline Help Center
    714-NEW-TEEN (714-639-8336)
  • The Trevor Project
    (800) 850-8078
    24/7 suicide & crisis prevention helpline for gay and questioning youth
  • Yellow Ribbon Suicide Prevention Program
    (303) 429-3530

OTHER NUMBERS

  • 1-800-THERAPIST
    1-800-THERAPIST (1-800-843-7274)
    Mental health referral service
  • National Drug & Alcohol Line
    1-800-662-HELP
    Information on alcohol and drug abuse, can also advise on local treatment options
  • National Mental Health Association Information Center
    1-800-969-NMHA (1-800-969-6642)
  • Rape, Abuse and Incest National Network
    1-800-656-HOPE (1-800-656-4673)
  • Self-injury at Safe-Alternatives.com
    1-800-DONT-CUT (1-800-3668-288)
  • Sexual Assault Crisis Line
    1-800-643-6250
    Available 24 hours a day, 7 days a week

HELPLINES IN THE UK AND ROI

Samaritans UK
http://www.samaritans.org/
Not just focused on eating disorders, but available for help if you feel down, depressed or just want someone to talk to.
UK: 08457 90 90 90 (Charge of 2p per minute)
ROI: 1850 60 90 90
Textphone (for the deaf or hard of hearing): 08457 90 91 92
jo@samaritans.org
Chris
P.O. Box 90 90
Stirling
FK8 2SA

B-eat Helpline
B-eat: Contact Our Helplines
08456 341414
help@b-eat.co.uk
Monday to Friday 10:30am - 8:30pm
Saturdays 1:00pm - 4:30pm
Sunday ~ Closed
Bank Holidays 11:30am - 2:30pm


B-eat Youthline
08456 347650
TXT: 07786 20 18 20
fyp@b-eat.co.uk
Online 1-2-1
Monday to Friday 4:30pm - 8:30pm
Saturdays 1:00pm - 4:30pm
Sunday ~ Closed
Bank Holidays 11:30am - 2:30pm

INTERNATIONAL

Befrienders Worldwide
http://www.befrienders.org/
To quote directly from their website: "We work worldwide to provide emotional support, and reduce suicide. We listen to people who are in distress. We don't judge them or tell them what to do - we listen."
Find a Helpline near You

http://www.pale-reflections.com/phone.asp
A list of available helplines for those with an eating disorder, in locations across the globe.

Disordered Eating Defined
Recovery, Health and Seeing Your Doctor
Support on the Web
Friends, Family and Carers 
Books, Stories, Clips and Memorial
Hotlines and Helplines
Resources - You Are Here

RESOURCES

The National Women’s Health Information Center (NWHIC)
Telephone: (800) 994-9662
TDD: (888) 220-5446
Web site: www.4woman.gov, ww.4girls.gov
NWHIC is a federal government Web site and toll-free call center that provides free, reliable women’s health information. Sponsored by the Department of Health
and Human Services’ Office on Women’s Health, NWHIC features special sections
on body image and girls’ health. The 4girls.gov Web site gives girls between
the ages of 10 and 16 reliable, current health information designed to motivate
them to choose healthy behaviors.

National Institute of Diabetes and Digestive and Kidney Disease (NIDDK)
Telephone: (877) 946-4627
Web site: www.niddh.nih.gov
NIDDK offers statistics, research, and educational information on its Web
site and manages The Weight-control Information Network (WIN), which
provides resources on obesity, eating disorders and other weight-related issues.

The National Heart, Lung, and Blood Institute (NHLBI)
Telephone: (301) 592-8573
Web site: www.nhlbi.nih.gov
E-mail: NHLBinfo@rover.nhlbi.nih.gov
The NHLBI Information Center and the Obesity Education Initiative provide
information about weight control, including tools such as an online BMI calculator
for adults and a menu planner. The NHLBI also operates a program called Hearts
N’Parks, a partnership with the National Recreation and Parks Association, which
helps provide activities for kids and adults that encourage healthy lifestyle
choices to reduce the risk of obesity and heart disease.

American Dietetic Association
Nutrition hotline: (900) 225-5267
Publications: (800) 877-1600 ext. 5000
Web site: www.eatright.org
The American Dietetic Association operates a nutrition hotline that provides
the public with nutrition information for a small fee. The association also offers
publications and other resources to the general public, health care providers and
other professionals, teachers, and parents.

National Eating Disorders Association (NEDA)
Telephone: (206) 382-3587
Information and Referral Helpline: (800) 931-2237
Web site: www.nationaleatingdisorders.org
NEDA is the largest eating disorders prevention and advocacy organization in the world. The association provides treatment referrals to those suffering from
anorexia, bulimia, binge eating disorder and to those concerned with body image
and weight issues. NEDA also develops prevention programs for a wide range
of audiences, publishes and distributes educational materials, conducts an annual
conference, and operates a toll-free eating disorders helpline.

The Body Positive
Telephone: (510) 548-0101
Web site: www.thebodypositive.org
E-mail: Info@thebodypositive.org
The Body Positive is a non-profit organization that educates people to think about self-esteem, health and body image in a new way. Their resources include a guidebook on how to create comprehensive, youth-led eating disorders prevention programs in schools and youth organizations, as well as videos on body image and self-esteem for girls, families, health care providers and educators.

#8  
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when you click on the links - not all of these conditions come up -  the link doesn't work - well not on my computer anyways.

anyways this looks like a lot of information, thats great.

Thank you, I've fixed it now!

Updated with an added link to a list of hotlines, contributed by NYCgirl. Thankyou!

awesome resource list - great work - this is one of the best I've seen.

 

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